Study Information
What is the UNC Health Registry/Cancer Survivorship Cohort (HR/CSC)?
We hope to enroll 10,000 participants in the Registry. This website is designed to explain what it means to enroll as a participant in the UNC Health Registry/Cancer Survivorship Cohort.
The purpose of this research is to collect information and biologic specimens that will be collected and stored together for use in different kinds of research; this is called a specimen "biobank." The purpose of this biobank is to serve as a resource for future research. Researchers use specimens and data from participants to study how genes, lifestyle and our environment may lead to disease and to study what things may affect how people do after they are treated.
Para ver esta información en Español, haga clic aqui.
You are eligible to participate in this research if you:
- 18 years of age or older
- have an appointment in the North Carolina Hospital system
- speak English or Spanish
Para ver esta información en Español, haga clic aqui.
What will happen if you take part in this research?
You will be asked to do the following if you agree to join the Registry:
- Give a small blood sample (about 2-3 tablespoons) or cheek sample from a mouth rinse which will be stored in the Registry’s Biobank
- Allow any leftover tissue to be stored if you have a biopsy or surgery
- You may be asked to answer a survey once a year
- Agree to allow researchers to get information from your medical records
- Agree to allow researchers to contact you in the future to invite you to take part in other research studies.
What are the Risks of Participation?
There are minimal risks to participating in this research.- There is a slight chance of minor bruising or fainting associated with obtaining the blood specimen however this risk is minimized as blood will be drawn by trained and skilled phlebotomists.
- There is a small risk of breach of confidentiality. However, all research staff will be instructed to keep data in strict confidence and information related to this research will be stored under conditions designed to protect the privacy of research participants. The link between your identifying and research information will be kept secure.
Some of the questionnaire items are of a personal nature and may make you uncomfortable. You may skip any questions that you do not want to answer.
Para ver esta información en Español, haga clic aqui.
What are the Benefits of Participation?
Research is designed to benefit society by gaining new knowledge. The information you provide will help researchers better understand the causes, treatments and prevention of disease, as well as ways to improve health care and quality of life. Future generations may benefit from the results and knowledge gained from this research – maybe even for your own children or your neighbors’ children.
Para ver esta información en Español, haga clic aqui.
