What will happen if you join?

What will happen if you take part in this research?

You will be asked to do the following if you agree to join the Registry:

1. Give a small blood sample (about 2-3 tablespoons) or cheek sample from a mouth rinse which will be stored in the Registry’s Biobank
2. Allow any leftover tissue to be stored if you have a biopsy or surgery
3. You may be asked to answer a survey once a year
4. Agree to allow researchers to get information from your medical records
5. Agree to allow researchers to contact you in the future to invite you to take part in other research studies.

   

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