For Researchers - Interviews and Questionnaires

Baseline Interview Eligibility

All participants enrolled in HR/CSC were eligible for the HR/CSC baseline general questionnaire. Interview priority was given to participants with a new cancer diagnosis that corresponded with a cancer-specific questionnaire (see questionnaire list below).

Question by question (QxQ) interview protocols are available upon request by contacting HR/CSC cscresearchers@med.unc.edu.

Conducting Interviews

HR/CSC aimed to conduct the first interview with newly enrolled participants within 2 weeks of enrollment. Interviews may have been conducted over the phone or in-person on the day of a clinic visit. The baseline general interview took approximately 45 minutes and the cancer-specific interview took about 15 minutes to complete.

To view progress in contacting participants for baseline general interviews, click here.

BASELINE QUESTIONNAIRE TOPICS

General

Demographics

  • Gender
  • Age
  • Race/ethnicity
  • Marital status
  • Education
  • Contact Information

Patient Reported Outcomes (PRO)

  • Quality of life
  • General - SF-12 & PROMIS global
  • General cancer-specific – FACIT
  • Sexual function – PROMIS
  • Cognitive function – FACIT
  • Functional status – PG-SGA

Health History

  • Cancer screening
  • Reproductive history
  • Comorbidities
  • Medications
  • Cancer symptoms – Rotterdam*

Health Care System

  • Access to health care
  • Patient provider communication - PSQ-18
  • Referring Physician

Lifestyle

  • Living conditions
  • Tobacco use
  • Alcohol use
  • Physical activity – GPAQ
  • Historical height/weight
  • Work impact - WAI

Cancer Specific Topics

  • FACIT cancer-specific modules
  • Additional symptoms
  • Relevant cancer-specific topics

Baseline General Questionnaires were administered to all participants across cancer types. To view the Baseline General Questionnaire, click here.

Cancer-Specific

Cancer-Specific Questionnaire - To view a Cancer-Specific Questionnaire, click on your specific topic of interest.